Diana’s Fibroid Foundation (DFF) was established in honor of Diana Leigh Tomkinson, who courageously battled a rare malignancy for nearly 4 years that may have been associated with her decades long struggles with uterine fibroids (leiomyomas).
Diana’s experience was similar to many women that are diagnosed with uterine fibroids—with a critical exception—her fibroids were hiding a malignancy that would eventually take her life at 60. She was diagnosed with uterine fibroids in her 40s and went through multiple embolization procedures to control the fibroid growth and associated symptoms before deciding to undergo a hysterectomy. Unfortunately, during the preoperative workup, a 12 cm mass in her abdomen was identified. The mass was eventually diagnosed as a rare sarcoma, perivascular epithelioid cell neoplasm (PEComa). It ultimately metastasized to the lung, brain, and spine, making for an incredibly difficult battle.
Despite the relentless spreading of the cancer, Diana remained ever hopeful that the next therapy would manage her disease.
Diana lost her battle on February 19, 2020 surrounded by her family.










